Wednesday, 18 November 2015

A night at Wembley to be proud of


Wembley Way last night
If ISIS and the French terrorists were seeking to divide us, I have to say that on the basis of my own eyes last night, they failed miserably. I wasn't planning to go to the England vs France friendly. I hadn''t bought tickets, but yesterday afternoon, I felt I really should. I felt it was the right thing to do, to show solidarity with our French brothers and sisters. My Neice/Goddaughter lives in Paris with her husband and four daughters. I messaged her on Saturday morning and asked how the family was? "Safe but scared" was the answer. No one should feel scared in their own home. So yesterday afternnon, I changed my mind and thought I really should go. I bought tickets for myself and my son online and at 7.30pm, we found ourselves making our way into Wembley Stadium.

We go to most England matches and many other games. This had a completely different atmosphere. For one thing there was no segregation. It was noticable just how many families and young children were there. We made our way up and I bought a cheeky beer. French and English fans mixed freely. I took some photos for groups of French fans. We had some freindly banter. It was an extraordinary atmosphere.

Then we had the National Anthems. First up was God Save The Queen, passionately belted out. Next up the Marseilles. This was belted out with equal gusto. At many England games, the fans have in the past shamefully boo'd the anthems of opponents. Not this time. The experience was extremely moving. I said to my son that we were priveliged to be there, but added I hoped he'd never see another night like it. For me, it was the worth the entrance fee just to soak up the atmosphere.

During the game there were Mexican waves, passionate singing, but none of the usual obscenities we expect to hear at matches. Given that England and France are traditional rivals and this is very much a local derby, it is an extraordinary testimony to the people of our nations that we could put all of that aside and make such a memorable night. The football was almost incidental. It was a good match. I suspect that the French players were somewhat overcome by the occasion as England were sharper and played the better football, crowned by a glorious goal by Dele Alle. But that didn't matter. As we left I exchanged words with a French fan. He said that for him it was a night he'd never forget. He was somewhat overcome.

Whatever ISIS hoped to achieve, they will fail. That can be the only conclusion from the scenes I saw at Wembley. Tragedies bring people together. I never thought I'd see and England vs France game at Wembley played with such a sense of love and friendship. I hope that something of that atmosphere persists and carrys football forward. It can and it should be a game to bring people together. Last night showed that it is possible for it to realise that aspiration.

Tuesday, 17 November 2015

My response as a musician to the Paris attack

Readers of this blog primarily know me as a blogger. I've written a blog for eight years now so I suppose this is a natural enough thing. I am proud of my blogging career, however this is not my main interest. I have been a musican all of my adult life. I have written songs, played guitar played in bands, run a music studio, organised gigs and festivals and spent my life loving music. My studios, Mill Hill Music Complex is one of Londons largest studio complexes and we have over 1,000 musicians a week passing through our doors. I have hundreds of friends who are musicians. With my own band, The False Dots, nearly 50 musiicans of all colours and creeds have played beside me. Our line ups have included musicians from Nigeria, Sudan, Portugal, Slovakia, Ireland, New Zealand, Austria, Jamaica and all parts of the UK. Once we play we are as one. Music brings us together. It unites us and brings joy to our lives. There really is nothing in the world like playing in a band that is making great music. One of the greatest things about London is we have brilliant musicians from all over the world. This helps us to raise our game and keeps the London music scene at the forefront of world music. It also makes London the most tolerant city in the world and the one most comfortable with its cultural diversity.

I believe these factors are not unconnected with the attack on the concert hall in Paris. I believe that hate filled, evil people see music as the enemy.The attack on The Eagles of Death Metal gig in Paris was an attack on musicians, music lovers and human beings everywhere. Any one of us could have been playing, watching, working at the venue or simply walking past.

We must stand up and be counted and say we will not be scared, intimidated or change our lifestyle. As a community musicians and music lovers were at the heart of this assault. We will fight back, but we will do it with guitars, drums, keyboards, lyrics and music.


These killlers will soon be erased and forgotten but great music will last forever.
That is why it is so important that we ensure we have music venues and studios. Music brings people together.

Monday, 16 November 2015

Why ISIS fanatics should pause for thought

As far as I am concerned, the biggest failure of the "civilised" world in dealing with the fanatics who support IS and commit atrocities is the one to engage their arguments from a religious perspective. On social media there is all manner of discussion on this issue, much of which makes me hold my head in total despair. There seems to be three strands. The first is the Richard Dawkins viewpoint which is to see the attacks as an indictment on every religion and every follower of every religion. Whilst I understand the Dawkins viewpoint that all religions are merely superstitions and everyone should subscribe to atheism, as this is most unlikely to happen especially in areas of Syria and Iraq in the near future, it is to me simply a debating point largely for middle class Western intellectuals. It offers no solution to the real issue that religion is being used as a justification for acts of evil.

The second strand is that we should pray for the victims and we should pray for peace. For me this is a lovely sentiment. Sadly however people have been praying for peace ever since people first became sentient. Nothing would give me greater happiness than for all of our prayers to be answered. Sadly all these prayers are is an expression of a desire. I wish they would make a practical difference. Whilst some families of victims will take solace in the fact that there is solidarity, that is about the sum total of the good our prayers will do.


The third approach which bizarrely seems to be the most practical yet least used is the one which I believe is the one most likely to actually have a chance of success, assuming success is turning people away from senseless violence. If we accept the fact that the people who perpetrate these terrible acts are religious people and if we accept that they have some sort of grievance with the rest of the world, then we can presumably start to see some sort of way to change their path. There are two possible scenarios. The first is that they are simply evil and don't really have any system of belief, using the religious angle as an excuse to behave in an appalling fashion. The second is that they are actually devout believers and as such they are doing these things out of some sense of belief that they are fullfilling God/Allah's will.

If they are truly simply evil people, with no real beliefs, then it is high time that the governments  exposed this. There are enough of them locked up. This should not be that difficult to demonstrate. As such, I think it is unlikely to be the case. Which presumably means the second scenario is the one we should seek to address. How would we do this? The reason young men kill themselves is because they believe they are doing Gods will. They believe they will get a reward in heaven and their sacrifice is a small price to pay for a much greater reward. To me this is the central premise that underlines the actions of the men who attacked Paris, committed the 7/7 atrocities and the 9/11 attacks as well as a host of other attacks.

Surely the way we stop these attacks is to convince the people who perpetrate the attacks that rather than fulfilling the will of God/Allah, they are actually doing the opposite and by doing so will not enter Paradise, but will end up in Hell in eternal torment? Whether you believe in Heaven/Hell, God/Allah and Satan is irrelevant. The perpetrators do and it is their 100% absolute certainty that means they are prepared to make such a sacrifice as giving up their life.

Given that there are 1.6 billion Muslims in the world and only 0.03% support such actions, clearly there is plenty of evidence in the Koran to use to dissuade them. Presumably they believe God/Allah is the father of all. I do not know of any father who doesn't love the children, even when the children do bad things. As a father, I see it as my role to help and guide my children when they have disagreements. A wise father does not congratulate one son for hurting another son, because that son has gone agaist the fathers will. That causes division and distrust. A wise father would tell a son to seek the fathers counsel and trust the father to deal with the problem. So it would seem to me that the terrorists are in effect saying they know better than "The Father" which makes them blasphemers.

They cannot say they are defending Islam. When you shoot people at  a concert or in a restaurant or at a football match, you are attacking innocent strangers. You have no idea who you are killing or whether they have any guilt at all. It is totally indiscriminate and that is completely banned by the Koran. The purpose of Sharia Law is to ensure that there is a process to follow if there is a dispute or a crime. You don't have to agree with Sharia Law to see that it has a structure. Nowhere in this structure is anything that allows you to mow down and kill a bunch of strangers because it furthers a political ideal (in the case of IS to set up an Islamic caliphate). There are plenty of things in Sharia Law you may disagree with, but that doesn't mean you can't say to the terrorist butchers "You do realise that you've broken your own laws and rules".  However much you disagree with the whole concept of religion, you cannot ignore the fact that unless you address people who conduct such atrocities in the terms they care about, they will not stop.

I've read dozens of articles over the weekend. Many seek to find obscure Koranic passages etc to demonstrate some sort of collective guilt for Islam. This really doesn't help anyone as it simly fuels the hatred of fanatics for "infidels".  The only thing which will stop them is the realisation that their actions are likely to deprive them of the reward in paradise they believe they are due for their actions.

What we really need is for Islamic scholars to directly address the groups who are committed to such atrocities, in terms they understand, confronting directly the concept that indescriminate murder will get you a fastpath ticket to paradise. That is the important message. I believe that any Islamic scholar who understands this and fails to speak up is in some way complicit. I wonder how God/Allah will judge such cowardice. Because what is the point dedicating your life to the study of your faith when you don't share the important lessons it teaches you with people who are misguided and are putting themselves and others at risk?

Sunday, 15 November 2015

15 years into the "war on terror" we still have no plan

It is coming up to 15 years since George Bush declared a "war on terror". In light of Fridays Paris attacks, the only conclusion a sane, rational person can conclude is that we are losing the war. How many billions have been spent? How many people have died? Despite all of this, we are further than ever from getting to grips with the issue. Bush said his aim was to destroy the terrorist group Al Qaida. It is perhaps strange to think that this has almost been accomplished. Sadly this has been achieved by the creation an even more gruesome group called IS (or is that ISIL or IS?).

Whatever you may or may not think of any of these terrorist groups, there is one undeniable fact. We are no nearer to getting to grip with the threat that these groups pose. When billions have been spent over such a long period surely the time has come to ask why we are failing so miserably. The answer is plain for all to see. It is impossible to deal with anything without some sort of plan. We don't have one. As someone who is living with cancer, a simple analogy is available. I have a small tumour in my prostate. I have the choice between dealing with this whilst it is small or waiting until it grows and invades the rest of my body. Ever since I discovered the problem, I've changed my lifestyle and tried to remove as many of the factors which promote cancer from my life as possible. I am also about to embark on treatment. In short I have a plan.

The only plan our governments seem to have is to attack the symptoms. The Drone strike on Jihadi John is perhaps the latest example. The guy was clearly a deranged sadistic serial killer. The US military "vapourised" him in a drone strike. It has been very good for the newspapers. I daresay they've sold a few extra copies, but think about it for a second. Does it really make any difference at all? If Jihadi John was a sick nutcase serial killer, luring people to his flat to film himself beheading them, killing him would have solved the problem. But he isn't. He is part of a large organisation. When he committed the beheadings, there was someone else holding the camera. There were other ISIS members there guarding the site. There was somone authorising the beheadings. Jihadi John was simply the public face of the movement, probably because he spoke good English.

Now consider the way the news will be greeted in the ISIS controlled areas of Syria and Iraq. A quick scour of socia media etc shows that they will say "Look, the West are hypocrites. They say they have law, but they execute Muslims with drones. They are too cowardly to do anything else".  They are addressing a radical Islamic audience, so they will say "Jihadi John is a martyr. Tonight he is in Paradise with his reward of 70 virgins". Most tellingly they will say "He must be avenged". These are not sentiments I support or agree with, but this is what is being said on the streets, on social media and in radio and TV broadcasts in ISIS controlled regions. We may not like it, but this pours petrol on the already incendary feelings of angry young men. ISIS do not put their horrific videos on Youtube to scare us. They do it to recruit the angry and disaffected. This is what we are up against and this is where the current "strategy" breaks down.

  The assumption is that if you kill the leaders and the figureheads, the philiospohy will die. Nothing could be more stupid. Every time the West acts outside of the law, we lose the argument. Guantanamo Bay is another example. For me it is beyond comprehension that you can keep people locked up for fifteen years without any judicial process. You either have some evidence to keep them there or you don't. Not only that, but some of them have been tortured for years on end. Now it may make us feel happy to know a few nasty people are having a thoroughly rotten time, but like a good Judo competetor, they are using our own strength against us. Given that there was no realisitic way of arresting Jihadi John, I have no issue with stopping him in this manner. I do however have a massive issue with the gory press coverage of the assasination. Why do we give the ISIS propagandists the opportunity to say "Look how they celebrate when a Muslim is killed"? Surely if we'd said "We deeply regret the fact that we couldn't make this individual stand trial for his crime, but this action was necessary as the man was a brutal serial killer and it was the only we we could prevent him killing innocent people, in direct contravention of both International Law and the principles of the Koran". If that was the only headline in The Sun and on Fox news, don't you think it may have been far more powerful. Glorifying that you have extra-judicially executed someone by "vapourising" them sends a completely different message to young and impressionable men, who are in the process of being radicalised.

In the west, we are blessed with the most uninspiring, useless crop of Politicians in living memory. Barack Obama has no clue about foreign policy. He's more than halfway through his second term and he hasn't come up with a single idea to deal with the issue. David Cameron is even worse. He has no authority, no plan and no clue. Wheras Britain and the USA have historically lead the west in such matters there is a complete vacuum. Don't get me wrong, I think that Bush and Blair were the architects of this disaster, but at least they understood the need for a plan. Whilst that plan was pretty disasterous for Iraq, Cameron and Obama have simply stood like rabbits in headlights as Libya and Syria have imploded. They have buried their heads in the sand, whilst ISIS have put down roots and bloomed.

The one leader who seems to understand the threat and have recognised the need for action is Vladimir Putin. His solution to the Syria crisis is not pretty. Bomb ISIS, strengthen Assad and then hope he wipes them out. Cameron and Obama wring their hands but they have no alternative. They have no plan. However you look at it, Syria is the Primary tumour. It is where ISIS are being driven from. If we have no other solution, I can see no reason why we should criticise Putin.

But there is another way. Ask yourself this. Do we really believe that our concepts of freedom, justice and democracy are worth defending and worth making sacrifices for? If the answer for you is yes, then those are the terms which we should address ISIS by. We should state our fundamental principles. We should constitue, under the auspices of the UN (after all that is why it gets billions of funding every year), a panel of regional experts to try and formulate a plan to actively deradicalise the angry young men in Syria and Iraq. We spend billions bombing them. Surely some of that money would be better spent educating them. As to the likes of Jihadi John. We should specifically state that extra judicial execution is a last resort. We should state that our preferred method would be to capture such individuals and see them put on trial for their crimes. If this is impractical or impossible and we need to stop them to spare innocent individuals, so be it. I personally would say to the likes of Jihadi John "Surrender yourself  and we will guarantee you a fair trial, where you will have legal representation" most wouldn't take up the offer, but when it becomes clear that they are losing, maybe it would not be such a bad option, to spend your life in a comfy prison, with hot dinners and a telly.

 We also have to try and end the Syrian civil war. Clearly this isn't a simple matter, but  Cameron and Obama cannot bury their heads in the sand. They are clearly scared that Putin has hijacked the plane and is steering a very different course to the one they wanted. As they lack the cojones to stop this, then they should at least try and make sure that the groups we have been rather tepidly supporting are not massacred as part of the settlement. If they are, then that will create another generation that believes the West is completely untrustworthy.

Which is in effect the problem. The West is not trusted in the Middle East. The reason for this is not irrational it is simply based on reading of history books. The only Arabs in the middle east who have ever been treated fairly and decently by the west are those who are rich, powerful and sit on large oil reserves. We turn a blind eye to all manner of sordid practises in coutries such as Saudi Arabia. We ignore sexism, racism, religious intolerance, beating floggings, stonings and hangings. What sort of extraordinary double standard can we have that says we turn a blind eye to stonings of adulterous women in Saudi Arabia, but we how with disapproval at ISIS murders? Until such time as ISIS can't say to angry young men "Look how these hypocrites behave" we really have nothing to counter their propoganda. If our leaders in the West were honest, they'd take a long hard look at themselves and then set up a properly funded UN task force to deal with terrorism in a fair and just way. We have some sort of model in South Africa with the concept of the Truth an Justice commision. It won't happen overnight. What we need is a UN sponsored plan, where the people of Syria and Libya and other places can see some sort of infrastructure put into place to guaraantee justice and to address the issues which drive the hate and anger. Ideally if external foces have to be used, they should be from countries which are predominantly Muslim, so there is no charge of crusaders arriving. There are many poor Islamic countries that would welcome a UN subsidy to provide peacekeeping forces. A scheme which aimed to bring peace and justice would be welcomed by the populace. The Syrian people are a well educated people used to living in towns and cities with a decent standard of living. They would welcome a return to peace and prosperity.

 I suspect that ultimately the choice we have is to either start actually live the principles we claim to have and deliver a plan based on those principles or sit back and let the Russians and Assad murder every last one of them. If I was a betting man. I'd put my money on plan B being adopted by the west. Sadly I think that Plan B will result in another fifteen years of this carnage and madness.

Saturday, 14 November 2015

Paris Attacks - reject hatred or the terrorists win

Image result for grief
Even Angels weep

"Darkness cannot drive out darkness: only light can do that. Hate cannot drive out hate: only love can do that." ― Martin Luther King Jr.

 There are some very bad people in the world. That has always been the case. Sadly that always will be the case. They come in all shapes, sizes, creeds and colours. They are fuelled by hatred. Hatred is a sickness. Like influenza it is contageous. It changes us, warps us and reshapes us. Once you are infected with hatred, you seek to infect others. You shut out the light and shut out the love. The terrorists who have committed the terrible atrocities in Paris are extreme cases. What are they seeking? They want us to hate each other. Rather than recognising we all have the same DNA, we all have the same fears and we all have the same aspirations they seek narrow false divisions. They don't expect their actions to do anything other than to stir up hatred. They want to see ordinary Parisians retaliate against other ordinary Parisians. They want refugees who have left Syria and Iraq to escape such horror to bear the brunt of the hatred. They believe that causing hatred between the Islamic community and the rest of the population will help ferment a religious war. As they have a fanatical, warped view of life, they somehow believe that a world in flames is a world that God wants to see.

It is clear to anyone with a brain that if there is a God (I believe there is but I respect those that don't) then God made a beautiful planet for us to cherish and enjoy. My understanding of religious texts is that they all call for us to treat each other with respect, reject violence and if we want to convert other people to our creed, then we should do this by setting an example of love, hard work and respect. Anyone who adheres to a religion purely because they fear repression, torture and death, they do not follow the religion at all. In fact they probably hate that religion. Subscribing to a religion (or an aalternative) should be a positive, informed decision. It should be made out of recognition that the teachings of that religion provide a way for the individual to live their life in a manner they want. I subscribe to the view that in faith, there is not a one size fits all. For some of us, the path can be atheisim. For others Christianity, Buddhism, Islam, Judaism. Whatever path my neighbour chooses it is incumbant on me to respec their choice. They have the right to make whatever personal choices suits them. I am more than happy to listen to peoples views of why they follow a particular path. I respect their choices. So long as they are prepared to grant me the same privelige, we can all get on fine and the world will be a better place for it.

The saddest thing of all is that historically in Islamic nations, other faiths have been accepted as part of the community. In Egypt, Coptic Christians have lived for a couple of thousand years. In Iran the Zoriastrians were an important part of the community. Bahgdad used to have a thriving Jewish community. In Bethlehem, the keys to the church are held by a Muslim as they were trusted to arbitrate between Orthodox and Roman Catholics. Ordinary Muslims are as disgusted by the actions of these extremists as ordinary Christians are by the actions of the Ku Klux Klan. It is as sensible to blame ordinary Muslims as it is to blame Richard Dawkins for the actions of Pol Pot. It is not religion that fuels the actions of the Paris killers. It is hatred. They seek to infect us. They seek to make us hate.

If you want to do something, do it with love. Do not blame people who have done nothing. Do not demonise people who are as disgusted as you are. It is not that long ago that the IRA were active and it was the ordinary Irish who bore the brunt of the nations antipathy. Fortunately people somehow managed to put the years of hatred and atrocities behind them and we moved on. In South Africa, Nelson Mandela came out of prison and brought in an era of National reconciliation. Despite many expecting doom and collapse in South Africa, Mandela was wise and strong enough to reject hatred. This culminated with wearing a Springbok shirt before the Rugby world cup final. The jersey had been associated with the hated Apartheid regime. Mandela transformed it into a symbol of national unity.

The point is that rejecting hatred and war means we all have a better life. Someone has to break the cycle. When an Islamist fanatic commits an atrocity, baying for revenge or taking reprisals against people who have nothing to do with the attack simply pours more petrol on the fire and infects more people with the hatred. However hard it may be with such strong emotions raging, we must reject hatred. We cannot view our fellow citizens, who happen to be Muslims with suspicion. If we treat them with love and respect that is far more powerful. Anger is a normal reaction to such an atrocity, but we are intelligent people and the most intelligent thing to do is to see through the agenda of the haters and to ensure that their actions are futile. 





Friday, 13 November 2015

The Friday Joke - Naval Interview techniques

Wot's this ear?

A Naval Officer was in a terrible accident, but due to the heroics of the hospital staff the only permanent injury was the loss of one ear. Since he wasn't physically impaired he remained in the military and eventually became an Admiral. However, during his career he was always sensitive about his appearance.

One day the Admiral was interviewing two Navy Master Chiefs and a Marine Sergeant Major for his personal staff.

The first Master Chief was a Surface Navy type and it was a great interview. At the end of the interview the Admiral asked him, "Do you notice anything different about me?"

The Master Chief answered, "Why yes. I couldn't help but notice you are missing your starboard ear, so I don't know whether this impacts your hearing on that side."

The Admiral got very angry at this lack of tact and threw him out of his office.

The next candidate, an Aviation Master Chief, when asked this same question, answered, "Well yes, you seem to be short one ear."

The Admiral threw him out also.

The third interview was with the Marine Sergeant Major. He was articulate, extremely sharp, and seemed to know more than the two Master Chiefs put together. The Admiral wanted this guy, but went ahead with the same question.

"Do you notice anything different about me?"

To his surprise the Sergeant Major said, "Yes. You wear contact lenses."

The Admiral was impressed and thought to himself, what an incredibly tactful Marine. "And how do you know that?" the Admiral asked.

The Sergeant Major replied, "Well sir, it's pretty hard to wear glasses with only one ear."

Dear David Cameron, please do something useful and abolish the GLA

Tony Blair made two big changes affecting the governance of London. The biggest was to introduce an elected Mayor. I think most Londoners think this has been a good thing for London. Both Boris and Ken are marmite men. If you love Boris, you probably hate Ken and vice versa.  But all in all, I think the consensus is in favour of the concept of a directly elected Mayor. I doubt London would have won the Olympics without Ken and Boris undoubtedly delivered.

The other change was to introduce the GLA. This is the body which oversees the Mayor. We elect the members at the same time as we elect the Mayor. For eight years our rep was Tory Brian Coleman. Then in 2012, Labours Andrew Dismore evicted him. Next year Andrew Dismore faces Dan Thomas, who is currently deputy leader of Barnet Council. The prize is a part time job, with a salary of £50,000 a year. There are lots of them. As well as directly elected members, there are top up list members. These are elected on a PR based system. This is to give  political balance. This is made up of has beens and never will be politicians. It is in effect a kickback for being a good party member. A very well paid kickback.

The GLA has lots of worthy debates and produces a stack of highly interesting reports. Each of the political groups has a team of political researchers and assistants, all on fat salaries. There is a huge bill for this. What do they all deliver?

I have a radical suggestion. Abolish the lot of them. Simply let the Boroughs nominate a councillor each to the assembly. Give them an allowance of say £10K a year to cover the hassle. Scrapping the GLA election will save a small fortune. I see no reason why a group of reps nominated by Boroughs would do a worse job. Sure there would be a different balance, sure we'd lose the fringe parties such as the Greens, UKIP but I see no real purpose in simply having powerless figureheads producing reports no one ever reads. Would Boris or Ken have been a worse Mayor with a Borough nominated assembly. Does anyone really believe the assembly actually made one iota of difference to how good a job Boris or Ken have done.

I am sure that individual members do a good job in their own way. This isn't a criticism of their efforts. It is a criticism of a bad system and a bloated and wasteful bureaucracy. So I rather hope David Cameron reads this blog and thinks "Well there is a saving we can make that will hurt nobody".

Thursday, 12 November 2015

Rog T's Cancer Blog - Nailing a common misconception

For those of you who are regular readers and have read the previous posts on Cancer, you can skip this first paragraph.This is the latest installment in my occasional series about how I'm adjusting to living with a big C in my life.  For those of you who aren't, here's a quick summary. I'm 51 years old and in October 2011 I  had a prostate biopsy following two "slightly high" PSA tests - 2.8 & 4.1. The biopsy took ten tissue samples and one of these showed a "low grade cancer" which gave me a 3+3 on the Gleason scale. I'm now on a program of active monitoring.  In early February, I got the results of the a PSA test - down to 3.5 and an MRI scan which found absolutely nothing, two more tests in 2012 were at 3.5 and 3.9, in 2013 my test was 4.0, Jan 2014 was 3.8, August 2014 was 4.0,  February 2015 it was  up to 5.5  and my latest in August 2015 was down againg at 4.6. In October 2015 I had a transperinial Prostate biopsy, that revealed higher grade cancer and my Gleason score was raised to 3+4 (Small mass + more aggressive cancer), albiet with small mass. I've no symptoms and sadly for a few people, if I'm gonna die soon, it won't be from Prostate cancer. Got the picture?

I wasn't really planning on writing another blog in this series quite so quickly after yesterdays entry, but as I am sure a few of you will have twigged, I am a man on a mission with this series of blogs. This mission is as follows

I want to promote screening and early detection of cancer, share information about treatments and debunk the myths that surround the disease. 
Todays part of that mission is to debunk a myth. For those of you not familiar with the blog and Barnet, there is someone I don't get on with, who takes great delight in taunting me about my cancer status. To me it is like water of a ducks back, I have more important things to worry about in my life, wife, children, band, business. But the latest tweet has given me an excellent opportunity to help dispel one big misconception about living with cancer.



shame the cancer drugs are making you even nastier and more obsessive than ever

Brian has made one of the common mistakes that many people make when thinking about living with cancer. He has assumed that because I have cancer and will be having a procedure early next year, I must be on powerful drugs, which are sending me a bit cranky. People like myself who have cancer detected due to a "well mans checkup" are likely to be low risk (Gleason Score 3+3). For these, the NHS's preferred and clinically most sensible course of treatment is to do nothing to treat the cancer. The NHS will simply monitor your PSA levels and take biopsies to ascertain whether the disease is stable or progressing. This is the situation I've been in since November 2011. 

When a Prostate cancer is detected early, it is relatively straightforward to monitor. When the cancer starts to develop and progress, such has happened to me (my Gleason score went up to 3+4 after the last biopsy) then treatment options are considered. For me, none of these included drugs. In fact I am not aware of any suitable drug based therapies for a localised, medium risk case such as mine. The options I had been offered were surgery, radiation and HIFU (High Intensity Focused Ultrasound). 

I have opted for HIFU. The doctor informed me that it is a day procedure. I will have 2 weeks recovry time off work and a month off playing football. That is it. I will presumably have antibiotics and pain killers around the time of the treatment. That will be that. The biggest risk to me is that the HIFU doesn't work and I'll have to have a follow up treatment. I cannot pretend that it all sounds pleasant, it doesn't. If I wasn't dealing with a potentially life threatening and limiting disease, there is no way I'd be having such things done. But I have two friends who are living with a Prostate Cancer that has spread into their bones and invaded their bodies. They are having hormone therapy and are simply managing the disease. Both are doing well and coping, but both would give the world to be in my position, where the disease is treatable as opposed to managable. 

What worries me about the misconceptions which the likes of Brian inadvertently spread is that it scares people. When Brian goes down to the Rotary Club for a G&T and tells his friends that this awful blogger has been sent round the bend by powerful anti cancer drugs, how will they react? Just suppose their doctor urges them to have a PSA test as part of a general wellbeing checkup. If they think "Oh yes, but I remember Brian saying that blogger was sent bonkers by the drugs after he had that" will they be so keen to get checked out? If Brian was simply one person with a misconception, I wouldn't be moved to comment, but his perception seems to be the norm. One of the most common reactions I get when I tell people that I am on "active surveillance" and the NHS are simply waiting for the disease to progress they say "It's those bloody Tories cutting NHS budgets, it's terrible".  I then have to spend half an hour defending the NHS and the funding for cancer treatment and explaining that "active surveillance" is by far the best clinical alternative for people in my position. 

So to sum up. If someone tells you they have been diagnosed with cancer, don't assume they are on medication. Don't assume that they are going to die or even have a vastly diminished quailty of life. Don't assume they won't be doing what I will be doing in an hours time and playing football. If they tell you, it is probably because they are hoping you will give them support. Whatever the prognosis, listen to what they have to say. Do not make assumptions. If they say they have a treatable cancer, that is because they have a treatable cancer. Doctors do not lie. If the news is worse, then they will need love and encouragement. I am extremely lucky. For all of my consultations, my wife has attended with me. I know some people who "spare" their nearest and dearest the pain of having to listen. I would suggest that in general it is better to take someone along for emotional support. If a friend doesn't have anyone to take, maybe you can offer to go with them. But most of all listen and don't make assumptions. When people see comments such as Brians, they assume there is an element of truth in them. They assume that the situation is far more serious than it really is. Whilst I am really not that bothered, when I get phonecalls from friends who have heard I am in a bad way, that is the downside. Each one means I spend half an hour reassuring them that I'm fine (and i'm sure they don't really believe me). But that is the truth and there are many people in my situation.

Barnet Labour leader Alison Moore resigns

The Barnet Times reports that Leader of the Labour group on Barnet Council, Alison Moore has resigned and is standing down. For many people in Barnet this will be considered long overdue. Anyone who has ever attended a council debate and seen Moore in action will be surprised that she has lasted so long. On many occasions a more effetcive leader could have skewered the various Tory leaders. As a campaigner she has been singularly uninspiring and has alienated many from the Labour party. Her relationship with local progressive campaigners and influential trades unionists has also been 'difficult'. Perhaps her greatest failure was to hold the then Tory Leader of Barnet Council Mike Freer to account for the Icelandic bank fiasco. Freer was extremely vulnerable and many Tories were deeply unhappy with his actions, effectively gambling on the markets with taxpayers money. Moores strategy in the council chamber forced the Tories to back him. A more effective leader would have pushed for a full public enquiry into the scandal, but Moores strategy effectively let Freer off the hook.

On many other occasions, the strategy of the Labour group was also naive and played into Tory hands. Backing the outsourcing of Your Choice Barnet was the last straw for many. We simply hope that Labour choose a leader capable of mounting sensible and effective opposition.

Wednesday, 11 November 2015

Rog T's cancer blog - decision day HiFU or Surgery

For those of you who are regular readers and have read the previous posts on Cancer, you can skip this first paragraph.This is the latest installment in my occasional series about how I'm adjusting to living with a big C in my life.  For those of you who aren't, here's a quick summary. I'm 51 years old and in October 2011 I  had a prostate biopsy following two "slightly high" PSA tests - 2.8 & 4.1. The biopsy took ten tissue samples and one of these showed a "low grade cancer" which gave me a 3+3 on the Gleason scale. I'm now on a program of active monitoring.  In early February, I got the results of the a PSA test - down to 3.5 and an MRI scan which found absolutely nothing, two more tests in 2012 were at 3.5 and 3.9, in 2013 my test was 4.0, Jan 2014 was 3.8, August 2014 was 4.0,  February 2015 it was  up to 5.5  and my latest in August 2015 was down againg at 4.6. In October 2015 I had a transperinial Prostate biopsy, that revealed higher grade cancer and my Gleason score was raised to 3+4 (Small mass + more aggressive cancer), albiet with small mass. I've no symptoms and sadly for a few people, if I'm gonna die soon, it won't be from Prostate cancer. Got the picture?

In October I got some rather unwelcome news. I received the results of a transpereneal biopsy that showed some of the cancer was Gleason 3+4, as opposed to the less aggressive 3+3 previously diagnosed. As this was the first time I had this procedure, which is more accurate, it didn't necessarily mean that the prostate cancer had developed. It is just that this form of biopsy is more accurate. I had three treatment options. Surgery, radiation or HIFU (a new ultrasound treatment). First up I met the Oncologist who discussed radiation options with me. His recommendation, given my age was that I do not go for this option. At 53, the possible long term side effects are far more risky than for an 80 year old.

Next up, I saw the surgeon. His recommendation was that I don't muck about and have a radical prosateectimy. He said this would make the problem go away for once and for all. The down side? A high risk of incontinence, impotence and infertility. Infertility is not the end of the world for me. I have three lovely kids and can't really see any situation where I'll be having any more. Impotence and incontenence are a different matter. For me, this is a real issue. Following the operation, I would be unable to ejaculate, however there is a physical sensation of orgasm.This is something I don't really understand, however my surgeon assurred me that this was something that was not an issue for most men. Approx 7 out of 10 men are able to get an erection following the surgery. It all depends on nerve damage during the op. The surgeon explained that the surgery I had would most likely spare the nerves, however "things happen sometimes". As for the incontenence, you need to do pelvic floor exercises and the majority of men are continent after three months. I explained that my preference would be for HiFU if possible. My surgeon felt that with my prognosis, I'd not be suitable for HiFU, which is still in the trial stage. He explained that the distribution of the cancer made it a less than optimal treatment. Following this discussion, I had mentally decided that I'd have to come to terms with surgery. I did however decide that if the HiFU team would see me, I'd have a chat.

So today, I found myself in the UCH with the HiFU team. My surgeon had more or less convinced me that this wasn't a go'er, but you should always keep your options open. Much to my surprise, my consultant took a rather different view to my surgeon. He explained the procedure and said that the team had assessed my case and felt I was suitable. Unlike surgery, there would be regular follow up. He said that if I could cope with the ongoing biopsies etc, then it would be an option. Of course, as the prostate was still there and they wouldn't be addressing all of the low grade 3+3 cancer cells. His view were that these could be monitored, so in effect I'd be back on active surveillance. Having lived with this for four years, I am comfortable with this. So I've opted for the HiFU. Whilst this doesn't offer the prospect of the issue completely going away. It does however mean that hopefully the quality of life issues can be postponed. This may be indefinately or it may just be for a few years. That is a risk I am prepared to take. I can always have the prostate removed later if the cancer again becomes more agressive.

In some ways it is Hobsons choice. Complete cure/Bad side effects risk vs Higher long term risk/less side effect risk. For me, with my current lifestyle, this is clearly the right decision. It looks like the treatment will take place in January. I will be out of action for about 10 days if all goes well. No football for a month. I can live with that. As HiFU is a relatively new treatment, I guess this will be of interest to a few people in a similar situation. I would urge anyone not to be put off by what the surgeons may tell you and if you want to explore HiFU have a chat with the team.